Surrey Coalition of Disabled People

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19.11.2021 weekly update

Welcome to the weekly update.  This edition includes:

1.  Coalition update

2.  Social/Peer support coming up

3. Research on improving residential care for older LGBTQ+ individuals & carers

4. Action for Carers event Sat 27th November in Guildford

5. Christmas Day lunch

6. Kidney proposal recommended for approval by the Committees in Common

7. Spotlight on Pancreatic Cancer Awareness

8. Surrey County Council Minerals and Waste Local Plan Issues & Options Public Consultation

9. Adult Social Care Monthly Briefing


1.  Coalition Update

Not all Heroes Wear Capes!

Well done Dave – A huge well done to Dave, one of our members who has been part of the successful campaign for Government funding for MND research, an investment of £50 million towards MND research was announced earlier this week!   

A huge £1000 raised for Guide Dogs UK – As you know Jonathan, one of our Board Directors took part in a sponsored swim to raise funds for Guide Dogs UK.  The final results are in and Jonathan has raised an amazing £1000!  Well done Jonathan and thank you to all those who sponsored him.

Direct Payments project – as you will have read last week, we are still looking for Coalition members who might like to be involved in the development of a new direct payment strategy.  One part of the engagement will involve us creating a ‘rich picture’ of how direct payments are now and how we would like them to be to guide the work.  If you would like to be involved in this work, through attending a focus group, having an interview, joining the core group writing the strategy and overseeing it’s implementation or in any other way then please do get in touch.  We will be sharing the link to a very basic insight survey with you next week, so you can always contribute in that way too. 


2.  Social/Peer Support coming up

Christmas Day Event – Following on from last year we are planning to host a short chit chat on zoom on Christmas Day for anyone who might be on their own and want a bit of company.  Please let us know if this is something you would like to join and if there is an interest then we will send you further details.  Please also read on for details of events in the community that you may like to attend instead.    

Get More Active update – There is lots of inspiration this week if you are looking to Get More Active!

  • Coalition member Jane Sellers recently visited Wheels for Wellbeing in Croydon. Read all about her visit in the attached document and find out how you can get involved here.
  • Sport in Mind are introducing a new FREE yoga session for adults experiencing mental health issues. The weekly sessions start on the 25th November on a drop-in basis with no booking required. Sessions will run on Thursdays from 2-3pm at the Spire Church, South Street, Farnham. Please see the attached flyer for more details.
  • YMCA East Surrey – Please see the attached flyer for a variety of current activities that the YMCA are running for people with disabilities. They are also aiming to set up some new goalball sessions for people with visual impairments. If you’d like to know more about the sport here is a helpful video Paralympic Sport A-Z: Goalball – YouTube. If you would like more information about the sessions when they start, please contact Katy by SMS text or phone on 07434 865062 or by emailing katy.hubbard@surreycoalition.org.uk
  • If you are looking for a new challenge, check out The Loughborough Challenge: Launched on the 1st November this exciting new challenge is inspired by the Duke of Edinburgh’s Award for young people. The Loughborough Challenge asks you to learn something new, to take exercise and to make a social contribution. It asks you to lean against your boundaries and see what’s possible! Participation is warmly welcomed by 25-54 year olds who self-identify as experiencing issues of mental health or mental/physical impairment. More information can be found on the website Home | The Loughborough Challenge
  • Join us here in the virtual café on Friday mornings at 11.30am to chat further about all things active.
  • And finally, don’t forget our Winter Wonderwheels team and volunteer request. A big thank you to those who have responded so far!

3. Research on Improving Residential Care for Older LGBTQ+ individuals & carers (Lesbian, Gay, Bisexual, Transgender, Queer, Questioning, etc.)

Please see an invitation attached from researchers hoping to speak older people and carers from the LGBTQ+ community in small online groups for about an hour and twenty minutes.  The discussions will help to develop a research project aiming to promote more inclusive care for older LGBTQ+ individuals currently living in Kent, Surrey or Sussex. A Thank you £20 Shopping Voucher will be given to each participant for their time.

If you would like to sign up please contact  Dr Jolie R. Keemink Research Associate, NIHR ARC KSS Social care J.R.Keemink@kent.ac.uk


4. Action for Carers event Sat 27th November in Guildford

Come and meet members of our Tech to Community Connect Team and others at this free event for unpaid carers at the Hive, Park Barn drive, Guildford GU2 8EN


5. Christmas Day Lunch

The Salvation Army, The Westway and Caterham Churches Together will be holding the annual Christmas Day lunch at The Westway, Chaldon Road, Caterham this year as well as offering a hot 3 Course Turkey Christmas Lunch (there is veggie option) delivered to family homes.  The seated meal at The Westway Centre includes pre-lunch music by Free Spirit and post-lunch Bingo! Following COVID guidance guests attending will be encouraged to remain seated at their tables and meals will be served to them. Transport to/from The Westway is available. 

The Christmas Day Lunch is free thanks to the generosity of donations from Waitrose, Caterham Churches Together, The Westway and individual donors. Attached is the Reply slip form for each family/ household to complete


6. Kidney proposal recommended for approval by the Committees in Common

Surrey Heartlands CCG have completed and published the findings from the public and patient engagement for the proposal put forward by kidney clinicians from St Helier and St George’s hospitals to improve inpatient care for kidney patients. Almost eight out of ten kidney patients across south west London and Surrey supported the proposal, with seven in ten of those who felt their journeys would be longer still responding positively on the grounds of receiving better care.

Surrey Heartlands will now be taking a decision making business case, which has been shaped by the engagement, to the south west London and Surrey Committees in Common (CiC). The CiC will be asked to approve that the proposal be taken forward to the next stage, which would be a full business case.  The virtual CiC will be held in public from 6pm-7pm on Thursday 18 November. Stakeholders and members of the public can access the meeting by clicking here. Papers for the meeting will be uploaded here shortly.


7. Spotlight on Pancreatic Cancer Awareness

November is Pancreatic Cancer Awareness Month to encourage people to recognise the signs and symptoms of this disease so they can receive treatment sooner. There are around 10,500 new cases of pancreatic cancer every year in the UK and nearly eight out of 10 are diagnosed at a late stage1.Surrey and Sussex Cancer Alliance is working with the national charity, Pancreatic Cancer UK, to encourage people to know the risk factors and recognise the symptoms of pancreatic cancer and seek medical advice if they have concerns.

Risk factors for pancreatic cancer

There are some key factors which may increase the risk of developing pancreatic cancer:

Age: In the UK, nearly half (47%) of people diagnosed with pancreatic cancer are aged over 75. It is uncommon in people under 40 years old.

Smoking: It’s estimated that smoking causes more than one in five pancreatic cancers (22%) in the UK. The risk of pancreatic cancer increases the more you smoke, and the longer you have smoked.

Being overweight: Around one in eight pancreatic cancers (12%) may be linked to being overweight or obese (a Body Mass Index of 30-plus).

Family history of pancreatic cancer: Pancreatic cancer may run in a family. This isn’t common, equating to less than one in ten (10%) of pancreatic cancers.

Pancreatitis: People with chronic pancreatitis (inflammation of the pancreas) have an increased risk of developing pancreatic cancer. About 70% of chronic pancreatitis cases are due to drinking high amounts of alcohol over a long time. 

New onset diabetes: At the time of diagnosis, 65% of pancreatic cancer patients have diabetes. In 15% of those cases, the diabetes is longstanding, however, for more than half of these pancreatic cancer patients, the diabetes is new-onset.

It’s important to remember that having any of the risk factors for pancreatic cancer doesn’t mean you will definitely get the disease. Find out more here.

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The symptoms of pancreatic cancer

As well as being quite vague, the symptoms of pancreatic cancer may come and go to begin with, and some people may not have all of them. The symptoms can also be caused by more common things, but it’s really important that anyone who experiences the symptoms of pancreatic cancer contacts their GP.

Symptoms include tummy pain or back pain, unexplained weight loss or loss of appetite, jaundice (yellow skin or eyes and itchy skin, change in bowel habits, indigestion.  And try the Pancreatic Cancer UK Symptoms Quiz


8. Surrey County Council Minerals and Waste Local Plan Issues & Options Public Consultation

We have been formally notified of Surrey County Council’s intention to prepare Surrey’s first joint Minerals and Waste Local Plan (MWLP); and they invite your representations in response to the associated Issues and Options public consultation.

The MWLP will be underpinned by a positive 15-year vision and seek to deliver sustainable minerals and waste management that provides for a steady and adequate supply of minerals and sufficient capacity to manage Surrey’s waste over that period. It will also provide for development that mitigates against and helps Surrey adapt to climate change, and combats biodiversity loss. It will reflect the growing overlap between minerals development and waste management development; and safeguard the County’s valuable mineral resources and waste management facilities from other development.

The Issues and Options public consultation is the first formal part of the plan-making process relating to the MWLP. It sets out various issues and challenges facing future minerals and waste management development in the County and proposes several planning policy options to address those issues and challenges. In this context the consultation material includes a proposed vision, spatial strategy, and strategic objectives for future minerals and waste management development in Surrey; and is underpinned by a Strategic Environmental Assessment and Sustainability Appraisal Scoping Report.

The Issues and Options public consultation will be open for a period of 16-weeks, from 15 November 2021 to 7 March 2022. All material representations received by the Minerals and Waste Planning Authority (MWPA) during the consultation period will be considered in preparing the subsequent ‘Preferred Options’ public consultation which is set to take place in June 2022.

The Issues and Options public consultation will be accessible to all stakeholders through a digital consultation platform via Surrey County Council’s website (https://www.surreycc.gov.uk/land-planning-and-development/minerals-and-waste/local-plan)  and consultation documents will be made available for inspection at a public library in each of Surrey’s districts and boroughs. Should you wish to provide a written response to the Issues and Options consultation please email mineralsandwaste.localplan@surreycc.gov.uk; or write to: Mr. Stephen Jenkins, Planning Development Manager, Surrey County Council, Planning Group, Quadrant Court, Woking, Surrey GU22 7QQ.


9. Adult Social Care Monthly Briefing

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