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Weekly Update 23rd May 2022

Dear Members

Welcome to the weekly update.  This edition includes:

  1. Coalition Update
  2. Social/Peer support coming up
  3. May Measure Month
  4. Citizen Ambassador roles
  5. Sight for Surrey Coffee, Cake & Celebrate
  6. Clothing Design Survey
  7. Call for Participants
  8. Hearing Aids for Music (HAfM) Resources
  9. RNIB Campaigns petition for more Audio Description
  10. Office and Service Administrator

If you prefer to listen to the weekly update, please click on the link below:

1.  Coalition Update

Thank You! – Thanks to all those who attended the Surrey Wide DENS meeting on Monday.  We had a fabulous turnout and lots of questions and feedback for the Surrey County Councillors present.

In Person DENS Meeting – This week we held our first in person DENS meeting for two years.  Members of the South West DENS met at the Godalming Baptist Church.  All went well apart from a couple of technical hitches!

UK Power Networks – You may remember that we asked if anyone on the Priority Register had difficulties during the recent storms.  We used the feedback from this and from the DENS meetings to put together a letter to the Chief Executive of UK Power Networks.  We received a very quick response to our letter and as a consequence some processes for making contact with the public are being reviewed.  Surrey Coalition have also been asked to work with UK Power Networks in the future!

2.  Social/Peer support coming up

Trip to Elmbridge Museum – Join us on Monday for a trip to Elmbridge Museum during our café slot at 11am.  Here are all the links you need to access the trip.

Join Zoom Meeting

Meeting ID: 871 7519 2377
Password: 484923
0800 031 5717 United Kingdom Toll-free

Glee Club – We had great fun last week listening to silly songs that make you join in!  From the Chicken Song (Spitting Image), Agadoo (Black Lace) and Right Said Fred (Bernard Cribbins).  This week’s theme is Motown, it would be great if you could join us on Tuesday at 4pm. 

Join Zoom Meeting

Meeting ID: 840 1449 7325

Passcode: 333386

0 800 260 5801 United Kingdom Toll-free

Get More Active update

After a tip off from Coalition member Richard, Katy and Angie visited Addlestone Victory Park Bowls Club this week to find out more about the club and their upcoming Open Day. Thank you Richard! Read all about local legend Barrie de Suys and the exciting changes that have been happening at the club in the attached article or on our website.

Addlestone Victory Park Bowls Club « Surrey Coalition of Disabled People

UK Deaf Sport, the National Disability Sports Organisation for people who are deaf and hard of hearing, have released a series of resources and tips for how to be inclusive during sport and physical activity. The aim is to help providers meet the communication needs of a deaf participant, and includes deaf peoples shared experiences in sport, their advice in communicating with a deaf person, sport specific resources and some useful signs. You can find the resources here: How to be accessible – UK Deaf Sport

Sport in Mind are starting FREE Badminton and Table Tennis sessions on the 27th May at the YMCA in Redhill. The sessions are drop-in with no need to book and are for anyone experiencing mental health problems.

Activity: Badminton/Table Tennis

Day: Fridays

Time: 1pm to 2pm

Location: ISF Sports Hall at YMCA East Surrey, Princes Road, Redhill, RH1 6JJ

3.  May Measure Month – High blood pressure puts extra strain on your heart and blood vessels – this is called hypertension. Over time it can lead to a number of health problems including heart attacks, stroke and kidney disease. A third of adults in the UK have hypertension and don’t realise they have it. It can be a silent killer as usually there are no symptoms, so knowing that you may have high blood pressure and taking steps to manage it could save your life.

There are a number of ways that you can manage high blood pressure and lead a normal, healthy life. It’s important to understand what blood pressure numbers mean, what levels are safe, and how to measure your blood pressure, for example at home or maybe at your local pharmacy – and also how to work with your GP practice if your blood pressure is high.

For more information visit NHS Southeast Clinical Networks and take a look at the films to hear more advice from the medical team and useful tips and advice.

4.  Citizen Ambassador roles – Are you passionate about improving health and social care services for people in Surrey? Healthwatch Surrey, together with Surrey Heartlands Health and Care Partnership, are recruiting for 2 Citizen Ambassador roles. These part time roles require a commitment of 15 hours each month.

As a Citizen Ambassador you will be listening to people’s experiences (especially those who do not often get their voice heard) to help increase understanding within health and social care organisations about the services they provide.

Citizen Ambassadors are everyday people who act as ‘peer researchers’. You will be given training to work with the NHS, Surrey County Council and Voluntary Sector Organisations to deliver small-scale projects and engagements, to hear the experiences of people in the community.

Further information, including a Job Description, is available on Healthwatch Surrey’s website ( The deadline for applications is 9am on 30th May.

5.  Sight for Surrey Coffee, Cake & Celebrate – Please see the attached flyer for coffee and cake in Godalming.

6. Clothing Design Survey – We have been contacted by Jamie who is would like to start an adaptive clothing business and is currently doing some market research.  Jamie would like to hear from a wide cross-section of people with disabilities to find out what their difficulties are with clothing and how clothes could be adapted in future.  Please can you help Jamie by filling out this survey

7. Call for Participants – Participate in a paid study on musical scene analysis.  Hearing Aids for Music (HAfM) project highlighted that people with hearing loss often experience difficulties identifying instruments and hearing melodies when listening to music.  HAfM are conducting a new study in collaboration with the University of Oldenburg which investigates the ability of people with hearing loss to hear out a melody or instrument from a musical mixture.

You will be asked to engage in a listening experiment during which you will be asked to decide whether a single target instrument, which was played to you in advance, is part of a subsequently presented instrument mixture or not. The mixture is manipulated in various ways (for example, the number of instruments is varied, or the loudness of the target instrument compared with the other instruments is changed).

The whole experimental session will last approx. 30 minutes and you will be paid for your time at a rate of 12 EUROS/£10 per hour. Results will inform current understanding of the effects of hearing loss on music perception, and contribute to advancements of hearing aids for music listening.
If you are interested in finding out more and participating, please see this blog. You can access the listening experiment directly.

8. Hearing Aids for Music (HAfM) Resources –  HAfM have developed a set of resources that are freely available on their website.  This includes a patient booklet Music listening with hearing aids which explains why music listening can be challenging with hearing aids, and provides helpful tips and strategies for improving listening experiences. It contains sections on assistive listening devices, advice on how to make the best of different listening environments and tips for having discussions with audiologists.

9.  RNIB Campaigns petition for more Audio Description – The RNIB want more accessible content so that blind and partially sighted people can enjoy TV in the same way as everyone else. 

The Digital Economy Act 2017 paved the way for requirements to make more video-on-demand services accessible with subtitles, sign language and audio description. But the targets for broadcasters have not been introduced and the law is yet to be put into action!

You can help by signing the RNIB petition calling on the Government to use existing legislation to compel broadcasters to make more content accessible. RNIB campaigns | Sign our petition asking the Government to make more Video on Demand accessible (

10.  Office and Service Administrator – Surrey Community Action are looking for an Office and Services Administrator support Surrey Community Action and the tenants of the Astolat charity hub. 

They are looking for someone to:

  • Ensure the smooth running of the “Astolat” charity hub, housing 8 other  charities and providing a range of shared facilities and services.
  • Provide administrative support for Surrey Community Action including human resources administration, office management and IT.
  • Act as Personal Assistant to the Chief Executive.

Closing date Friday 27th May, interviews planned for Tuesday 31st May


Addlestone Victory Park Bowls Club

Picture of Addlestone Victory Park Bowling Green

This week Katy and Angie visited Addlestone Victory Park Bowls Club to find out a little more about the club and their upcoming Open Day. Thanks to Coalition member Richard, who first told us about the open day during one of the virtual cafés.

There has been a huge change at the club moving from the dare we say it, somewhat stuffy and exclusive nature of bowls to a desire to be truly inclusive, accessible and a real asset to the local community. The story is a remarkable one – you can read the full version on their website – Barrie de suys Story Addlestone | Addlestone Bowls, – but here is the brief:

Barrie de Suys has become a bit of a local legend and Addlestone’s very own Captain Tom. During lockdown, aged 86, he decided for everyone’s mental and physical health to draw the local community into the park by walking around the park perimeter to raise money for the RNIB. By October he had walked 2400 laps equivalent to just under 1450 miles and raising over £10,000 for the RNIB. He became well known amongst the local community who would join him or bring water and snacks.

Barrie was still an honorary member of the bowls club; he had served as club Captain back in 2002 when the club had 100 members and he was extremely upset to see the clubs demise. Over the years membership had dwindled to just 4 at the beginning of 2021 and the council were about to stop the club subsidy which would effectively close the club down. The feeling was that the club was not doing anything to attract new members, indeed people were being turned away for not wearing the right clothes. Although Barrie hadn’t played since 2016 due to arthritis, he wanted to do something to help save his club. The boards around the green needed replacing and the council agreed to pay for new boards as Barrie had agreed to creosote them. This he did, twice, working all day for 2 months.

The club sunk its remaining funds into an Open Day in May 2021 and by the end of the day 25 members had signed up. More importantly the club was becoming more outward looking and welcoming with Barrie embodying the new values of accessibility, inclusivity and self-sustainability. He was often at the club giving something back to the community; gardening, umpiring and coaching a new group for adults with learning disabilities that he had helped set up. People came into the club to bring him food and drink still and joined up because of his local reputation. By the end of 2021 the club had 41 members and a community café being run out of the clubhouse. Angie and I can vouch for the quality of their cakes!

Indeed, we had a pleasant meeting in the sunshine with tea and cake and a chat with club secretary Albert Tapper about the plans for the future of the club. Albert spoke enthusiastically about improving accessibility to the clubhouse and was keen to seek our advice. The Art’s and Craft style clubhouse currently does not have step-free access. However, funding applications have been made to add this and accessible changing (including a Changing Places toilet) as well as additional adaptive equipment. In the meantime, food and drinks can be served by the green on the level path and there is a Radar key accessible toilet within 50 yards of the clubhouse.

The upcoming Open Day is an ideal time to pop along and see what it’s all about. The event will be hosted by Gill Platt – Surrey parabowler and member of the Commonwealth Games team for 2022. There are 200 free cream teas available from local supporter the Gingerbread Bakery. They will have two “Bowls Royce” chairs available for use on the green for wheelchair users who are able to transfer. They will also have boccia style ramps available from 2.30pm for playing from outside the green for those who cannot transfer.  Why not give it a try – you might be a champion bowler, you will certainly have a fun social afternoon!

Virtual trip to Hever Castle

In April we were treated to a fabulous virtual trip to Hever Castle.  Harriet our expert guide, took us through the full history of the castle and some of our members were able to view rooms they had never seen before because they were on the first floor.

Watch the full virtual trip below. For subtitles, click on the ‘cc’ icon on the bottom of the video

For subtitles, click on the ‘cc’ icon on the bottom of the video

Find out more about our social activities

Virtual Café

Bring a cuppa and join our chat. The cafes are held on a Monday at 11am and on a Friday at 11.30am. There’s no agenda for the meeting, it’s just a catch up about anything and everything! Join the conversation!

Virtual trips

We have excellent reviews on our virtual trips. We have been to Monkey World in Dorset, Hever Castle in Kent, Brookland Museum in Surrey and lots more all without leaving the comfort of our homes.

Craft club

Whether you are a regular crafter or just fancy giving it a go, we’d love to see you. Our craft club takes place virtually on a Tuesday at 12pm. We exchange tips on paper crafting, crocheting, painting, sewing and knitting, through sharing the progress of our own creations! We also work on projects together such as cross stitching and reversable summer bucket hats.

Glee club

They say that music is good for the soul. Each week we have a theme to the session, whether that’s sharing your favourite song or finding a silly song. It’s a fun lively session that will make you a smile. Some choose to perform their songs, whilst others submit a Youtube link. Join us on Tuesdays at 4pm.

The Weekly Quiz

How’s your general knowledge? Each week we run a large quiz which people attend through video chat or calling in. Laughs are guaranteed and joke answers or extra fun facts can sometimes gain you extra points! The quiz takes place on Thursdays at 2.30pm

Book chat

Love reading….this is the club for you! We find downloadable books to read together and discuss, alongside sharing our other top reads and recommendation of the week! We also hold virtual special events, such as a murder mystery activity session, and a Jubilee cream tea. Join us, you might discover a favourite new author. Book chat takes place Wednesdays at 2.30pm

To book onto any of the above events, please email:

Weekly Update 16th May 2022

Dear Members

Welcome to the weekly update.  This edition includes:

  1. Coalition Update
  2. Social/Peer Support coming up
  3. Tapestry Day Club
  4. Surrey Wide Creative Hope Project
  5. Voluntary Action South West Surrey (VASWS)
  6. Disability Football Taster Session at the YMCA
  7. Pop-up charity shop for Dementia awareness week
  8. Plans for new homes on the site of the former Horley Library
  9. Runnymede Borough Installation Update
  10. Spelthorne Borough Installation Update

If you prefer to listen to a recording of the weekly update, please click on the link below:

1.  Coalition Update

Disability Empowerment Network (DENS) meetings – Just a reminder that the DENS meetings started last Monday.  This week we have the Surrey wide DENS on Monday evening at 6pm on Zoom.  Three Surrey County Councillors will be speaking to the group about the barriers Disabled people face when standing for election as County Councillors.  All are welcome to attend.  Please contact the Involvement Team for the joining link.

On Wednesday we will hold our first hybrid meeting.  Members of the South West DEN will meet in person and online.  We will let you know how we get on! 

2.  Social/Peer Support coming up

Glee Club – Last week the group enjoyed sharing their favourite songs from film or TV.  There was such a great variety of songs to listen to.  This week’s theme is silly songs that make you want to join in!  Glee Club takes place on Tuesdays at 4pm  Join Glee Club

Get More Active Update – Mole Valley Bowmen are taking part in Archery GB’s Start Archery Week by running a free archery taster session in Dorking.

Where: St Martin’s C of E Primary School, Dorking

When: 21st May 3-5pm

Cost: Free. Equipment is provided.

The archery will take place on the school playing field on grass. There is step free access from the car park to the field. Lightweight beginners recurve bows will be available. Pre-booking is required via the website

Start Archery Week – Mole Valley Bowmen

If you have any questions or require further information, please email

Join us in the virtual café this Friday at 11.30am for more Get More Active chat. Friday Virtual Cafe

3.  Tapestry Day Club – The Tapestry Day Club supports people living with early stage dementia, offering a stimulating and engaging day in the family homes of their hosts. The day also provides valuable respite to their carers. Additional funding has enabled the tapestry day club to discount the day rate to £40 for approximately a 5 hour day with an additional £10 if transport is required.

Tapestry Day Club is a not-for-profit social enterprise and offering unique social day support across both Surrey and West Sussex. If you know anyone who could benefit from a regular, social, and engaging day out, please visit the website ( They have two wonderful hosts joining the team around Haslemere and Hindhead in support of guests from Farnham and south of Haslemere and all the villages and towns in between.

Or perhaps you would like to join their energetic, committed & well remunerated team of hosts? If you have a day a week and would like to support the older people in your community, please get in contact –

4. Surrey Wide Creative Hope Project – Public Health at Surrey County Council are going to be running an exciting project across the county – it will be based on the theme of ‘Hope’ and is for anyone that wants to get involved.

This project is for anyone living in Surrey aged 18 years old or above, either as a group or an individual. There is also the possibility for 16-18 year olds, who are already in groups run by local organisations, to take part too.

Surrey Public Health would like to find out what kind of activities you’d be interested in, and they will pull these ideas together to create inspiring experiences where you can express what HOPE means to you, whilst connecting with others, and maybe trying something new.  Hope Project Questionnaire – Surrey County Council – Citizen Space (

5.  Voluntary Action South West Surrey (VASWS) – VASWS are looking for a Community Development Worker who will work closely with a wide range of partners to support local people in addressing the population needs across the boroughs of Guildford and Waverley, with particular attention given to the Park Barn, Westborough and Stoke areas of Guildford. Community Development Worker – Voluntary Action South West Surrey (

If you know of anyone who may be interested in applying for the role, please can you ask them to follow the link above to complete the application form.  The closing date is the 29th May.

6.  Disability Football Taster Session at the YMCA – YMCA East Surrey are partnering up with the FA to offer a pan disability football taster session for those aged 16+ years on Thursday 19th May at YMCA East Surrey. The session will take place from 10.30-11.30 at a cost of £3.30.  Players do not need previous experience; all abilities are welcome.

7.  Pop-up charity shop for Dementia awareness week – Please see the attached flyer for more details.

8.  Plans for new homes on the site of the former Horley Library – Please see the attached consultation leaflet for more details.

9.  Runnymede Borough Installation Update – Please see attached document.

10.  Spelthorne Borough Installation Update – Please see attached document.