Closure of Surrey Disability Register
The closure of Surrey Disability Register
Members of Surrey Disability Register (SDR) received a communication from Surrey County Council towards the end of last week announcing the closure of the register following a consultation earlier this year.
Surrey Coalition of Disabled People and Surrey Independent Living Council both opposed the closure of the register during the consultation and have written to Surrey County Council to express our disappointment in this decision.
We believe that this removal of a benefit for the disabled community couldn’t have come at a worse time, with us being in the midst of a global pandemic which has disproportionately affected disabled people.
We reject entirely the stated deduction that 71% people not responding to the consultation indicates that they do not value the register. Of the 29% of members that responded, the majority expressed that they wanted the register to continue. The ability to respond to a consultation is not a given for the disabled community for several reasons. The ability to access and respond to a consultation does also rely on receiving consultation documents in an accessible format.
To support Surrey County Council in their need to make savings, but keen to ensure services for disabled people were not lost, the Coalition and SILC suggested what we felt was a viable alternative; that we take over the coordination of the register, unfortunately this was rejected on the grounds of data protection (GDPR). Bearing in mind that both organisations coordinate services and projects for both health and care, we were surprised by the information included in the response letter that suggests that we wouldn’t be able to hold personal information securely. For the avoidance of any doubt, both the Coalition and SILC maintain the highest standards of Data Protection and fully comply with all data protection legislation and best practice.
Both organisations believe the register is of benefit to disabled people and that it should continue. Both organisations believe that it could be done better.
We now intend to work on building plans for a new register, a register that becomes a single place for disabled people to register that then links them in with other services and businesses to get the best deal for disabled people. If you would like to join our project group to help us get this right, then we would love to hear from you.
Very best wishes,
Clare Burgess Richard Davy
PROTECTING OUR MEMBERS’ PERSONAL INFORMATION
IMPORTANT INFORMATION FOR OUR MEMBERS
Protecting your Information and your Rights
New national rules come into force on 25th May 2018, called the General Data Protection Regulations (GDPR). This is what it means:
When you joined Surrey Coalition of Disabled People you signed a joining form giving us information about yourself so that we could keep in touch with you and send you information. We promised you that any information we ask you for will be kept private. We will continue to do this.
Information we hold about you
We hold the following information about you on a secure database:
- Your name and address
- Your telephone and/or mobile phone number
- Your email address if you have one, and
- Your date of birth
You were also asked to let us know:
- Whether you wanted to join as a full member (a disabled person) or as an associate (supporter or carer)
- We also asked you to let us know which types of impairment or disability you were interested in, so that you would receive information relevant to you
What this information is used for
As stated on the Joining Form, we use the information we hold about you to:
- Make sure you are kept informed – by sending you our Newsletters with information about meetings and events in which you can get involved and have your say. We also use your email address, if you have one, to send you additional information
- We make sure you have the support you need – for example arranging transport for you to attend meetings and events
- We may also use the information we have about you in an anonymised form to produce reports on the number and diversity of our members
Sharing your personal information
We do not share your information with anyone else, unless you specifically ask us to do so. Examples of where we share your details include:
- If you ask us to arrange transport to attend a meeting, we will need to share your name, home address and phone/mobile number with taxi companies or voluntary car drivers
- If you say you want to join other groups, such as the Disability Alliance Network, then we will share your name, address and contact details with the organisers of that particular group
You have the right to:
- See the information we hold about you
- Ask for it to be amended or corrected, and
- Ask to have the information deleted if you no longer wish to be a member of Surrey Coalition of Disabled People
You can do this by:
- Telephone: 01483 456 558
- Text: 07780 933 053
- Email: firstname.lastname@example.org
- Text Relay: 08001 01483 456 558
- By post to Surrey Coalition of Disabled People, Astolat, Coniers Way, Burpham, Guildford, Surrey, GU4 7HL
Get Together / Use Your Influence
An event for those who use mental health services, their families and carers
Friday 24 March 2017
10.30am – 2.30pm
at Leatherhead Leisure Centre, Guildford Road KT22 9BL
The Independent Mental Health Network for Surrey and North-East Hampshire invites you to participate in this event for those who use Mental Health services, their families and carers.
We work together to help people get better support and access to mental health services now and in the future.
At this event, you can find out how services are changing, and say what you think would make them better.
Find out where to get the right support
Find out about current changes and future plans for mental health services
Share your experiences and suggestions to help us to improve services.
Please forward this invitation to other people you think may be interested.
If you can, please travel together on the day – this event is about being together and talking together.
Follow http://www.useyourinfluence.org.uk for more details.
A copy of the event flyer is below.
North East Hampshire and Farnham Innovation Conference
North East Hants and Farnham CCG invite people living in their area to an Innovation Conference
On Monday 27th March 2017
9.30 to 3.30
At North Hampshire Golf Club
They are looking for creative and innovative ideas to improve health services for local people and also a few people to join their Panel to help them choose the right projects to fund.
If you are interested please email NEHCCG.email@example.com, or phone 01252 335 154, or Text 0777 555 3574.
Mental Health Network Update
The Emotional Wellbeing and Mental Health Partnership Board has supported the development of an Independent Mental Health Network, as a clear way for people to influence the commissioners who fund services, and to have their voices heard and be acted upon.
South East Coast Ambulance Service News
The Trust has published the independent review undertaken by Deloitte into our Red 3/Green 5 Pilot. We have been working with our regulator, Monitor, for some months to review the circumstances which led us to implement a change to the way some calls passed from NHS111 to the 999 service were triaged over Christmas and the New Year back in 2014-15. The change meant that up to an extra 10 minutes was allowed for 999 clinicians to assess whether a patient needed a quicker response or less urgent response than the one allocated by NHS111.
This review, (please find attached), looked specifically at the decision-making processes and governance around the implementation of the pilot. It did not look at the impact of the pilot on patients (i.e. whether patients’ conditions were worsened or treated more effectively than usual as a result of the pilot), which is subject to a separate, clinically-led independent review, due to be concluded by June 2016.
The Trust welcomes and accepts the findings of the review in full. It recognises that the governance surrounding the pilot was inadequate, and has already started to make serious changes to the way matters of governance are managed and dealt with to make sure lessons are learnt and a lapse in governance of this sort does not happen again. A joint recovery plan is being agreed with the Trust’s commissioners and Monitor, its national regulator, to address concerns.
We will publish the full findings of the independent patient impact review as soon as it is complete. However, in the preliminary work to date, no clear indications of patient harm have been identified. Indeed, the review has identified a number of seriously-ill patients who received an improved response, due to earlier clinical intervention, as a consequence of the pilot.
The Trust Chair, Tony Thorne, has confirmed his resignation, having informed Monitor in December of his intention to resign once there was a new Chair in place. SECAmb would like to thank Tony for his commitment and clear direction to the Trust during the past four and a half years.
The Trust is pleased to announce that it is appointing Sir Peter Dixon as the Interim Chair, at Monitor’s request and is looking forward to working with him. The process and timetable for appointing a permanent Chair will be agreed in line with legislation and the Trust’s constitution.
SECAmb Chief Executive Paul Sutton is currently taking mutually-agreed leave of absence, while the Trust determines the appropriate actions to take.
Also attached is a summary of the Independent Review, undertaken by RSM the Trust’s internal auditors, at the Trust’s request, into Ambulance Quality Indicators.
SECAmb would like to take this opportunity to reassure our members that the Trust and its staff are, and always have been, committed to delivering a high level of patient care and service. Staff from across the Trust are, as ever, working hard to provide a safe and highly-skilled level of professional care, which patients, quite rightly expect to receive.
DAA – Disability Action Alliance
Dear DAA member
I am writing to you to inform you of some exciting developments in the DAA. I am really pleased to inform you that the Office for Disability Issues (ODI) is providing a 1 year grant to fund the next stage of the development of the Disability Action Alliance (DAA) and its long-term strategy. The strategy will both focus on ensuring the long-term sustainability of the DAA and build on natural evolutions in the way that members are engaging with each other.
As part of this grant the steering group has decided the DAA’s chairing organisation, Disability Rights UK should undertake the secretariat function for the period of the grant. The Steering Group recognises the importance of seeking input from DAA members as this work develops and will be approaching the membership for input from March-May.
For more information, please do visit our news story and the webpages set up to keep you informed and engaged as this work continues.
Head of the DAA Secretariat and Steering Group member
Office for Disability Issues
Department for Work and Pensions
7-12 Tothill Street
London SW1H 9DA
Support the Disability Action Alliance – Join up now and let’s start making a real difference www.disabilityactionalliance.org.uk
Twitter name: @DISactAll
Free Confidence Building
Free Confidence Building with a difference!
Is your mental health not as good as you would like?
If so & you haven’t already attended one of our confidence building days, we would like to offer you the opportunity to attend a Confidence Building Through Lifemusic Training day. Friday 12th February 2016 10.30am – 4.00pm at Dianthus Building, Woking.
Book your place by contacting Alison.firstname.lastname@example.org, or phone 01483 456558 or text 07780 933053. Transport assistance is available if required.
We are excited to be offering this training in 2016 following our successful day in mid Surrey in 2015. Check this link for more information.
Draft Learning Disability & Autism Strategy 2016 – 2020
Surrey’s Draft Learning Disability and Autism Strategy 2016 – 2020 is now on the Partnership Boards’ website.
Please have a look and make your comments and suggestions through the survey on the same page. The survey will be open until the end of January 2016. Please feel free to pass the message on to anyone else you know who may want to respond.